Pain Management Programme Day 10
My tenth day has been and gone at the Pain Management Programme.
You can catch upon my PMP Days here:- Pain Management Programme
Today we had Deep Muscle Relaxation and also Circuit Training. I am writing this the next morning and have to say my leg has flared up again, so I know it is something within the Circuit Training, not the Deep Mindful Movements as I have been fine with after effects once I have participated in this.
So, let’s start at the beginning, tiredness has set in it seems always on the 2nd day of the course of each week, I am noticing a pattern.
I forgot to say that on Tuesday we found out that one of our fellow Pain Management Participants was no longer going to be attending the course. She was always suffering the worst I think out of all of us, the first week she had a flare up and wasn’t going to come in due to the amount of pain she was in. The clinic spoke to her and asked her to try and come in. Bear in mind also she lives a fair distance away and is also having to pay for taxis and sit in another flare up situation in the car. She did however struggle to come in for just an hour and spend some one on one time with one of the clinicians.
The second week she did not come in for the last day, due to another bad flare up and I guess her pain was just too bad to be able to make the long journey in. We found out that the Pain Management Staff had told her that it would be unsuitable for her to continue the programme due to the time she had not been able to attend.
As a group we found this very hard to take on board and was quite de-motivating. I think from our point of view, we felt that this person had made a great effort to come in and was suffering the worst, she had spent money and organised to be on this course. She had also bonded with us and having other people you get on with who also suffer is a ‘huge’ thing and very important to feel you have that supportive network. We felt that as it was the second week, not the first that she should have been encouraged and allowed to continue.
The thing is we are taught about flare ups what we should do when we have a flare up. That doesn’t include having to get in to a taxi and be in a situation that really isn’t conducive at that time to the amount of pain one is in. We had felt that the clinicians would have asked her in early perhaps to go over what was missed, which is also in her hand book and been Mindful about her journey. But maybe we are missing something, maybe there are other reasons that as participants we just don’t see, but it is sad nonetheless and we will kee in contact with her.
Moving on from this, it was about activity/exercise and explaining our pain today. We had to roleplay and pretend to be someone who exists around our pain and is present a lot and or something we felt needed to understand more about our pain. I chose my husband, it was a fairly surreal experience. I had to talk as him and say what I felt about ‘me’ and my pain, what I thought she would gain from the course and or had gained. It was an interesting experiment and useful to be ‘on the other side’.
We then spent time talking about the notes and how we felt we could then be ourselves to explain better our pain.
We went in to a group of three and ended up having an open discussion as to all our thoughts and processes on this.
We touched briefly on our Pain Menu, something I had not heard of before, the things that our personal to us that contribute towards our pain.
Then we moved on to exercise. It is important for us to take away some form of desire to be more mobile within our remit, taking in to consideration the boom and bust etc.
We looked at obstacles and how we could work around those.
One of the physios described a helpful FITT system, where within your exercise routine you have Frequency, Intensity, type and time. You can alter just one of those things within your exercise routine if needs be, however not two, because it is at that stage you boom and then bust and then as a consequence give up exercise, normally due to a bad flare up.
We talked about the Deep Muscle Relaxation, what we thought of it. I felt that I would like to take away a Mindful routine but felt that the current one offered was quite bitty, disjointed, perhaps something like a Thai Chi movement would be better as more flowing and easier to remain in the moment with it.
We also talked about Circuit Training, I do feel it has caused me more problems than good. They talked about whether we thought a one on one programme would have been better, we said yes, we are all different and it would have given us much much more confidence in what we were doing.
I will however take away from this perhaps having a routine at home, some of which Jane has given me already from my Gyrotonic and have a system going that I stick to regularly.
That brings me on to the need to make a timetable…..on my to do list!
Went home with tiredness beyond belief, then bed!
© Justine Nagaur